Simone Foundation of  H.O.P.E.

It began in the Special Care Nursery with L.O.V.E. and H.O.P.E. 

About Simone

Simone was born at 5 1/2  months and weighed 1lb 13 ounces. Due to her prematurity she stayed in the Special Care Nursery for the first 4 months of her life. The underdevelopment of her lungs caused her to remain on oxygen for much of her stay.  During her hospitialization, she underwent heart surgery at 2 months.

Simone would soon begin to grow and gain weight. On June 16, 1999 she was released from the Special Care Nursery, and sent home on oxygen. Although she tipped the scale at 4lbs, her tiny body still had some catching up to do.

For the next month, Simone became acclimated to being at home. She began to need her oxygen less and less. However, her head began to literally grow. The doctor diagnosed her with hydrocephalus (fluid on the brain).  The only way to treat this was to insert a Ventriculoperitoneal (VP) Shunt. Once the brain surgery was complete, her head returned to its normal form.  

The premature birth caused several challenges for Simone. She was diagnosed with cerebral palsy at the age of 3. As Simone grew, she never met any milestones. She was 5 years old when she attempted to start walking. Her orthopedic doctor recommended surgery on her legs. The surgery was a success and allowed Simone to have increased ambulation. With physical therapy, she was able to walk with increased endurance.

Concurrently, with Simone's diagnosis of cerebral palsy, she was diagnosed with severe cognitive delay. Shortly thereafter, she was diagnosed as autistic. The many appointments that followed these diagnosis were extremely overwhelming to  the parents and child. Intervention for the multiple disabilities began immediately upon diagnosis.
The frequent doctor appointments were becoming routine. 

The next challenge would be her education.